tag:blogger.com,1999:blog-2078628465077598492.post4818805844210712443..comments2022-12-25T21:52:24.091-08:00Comments on Ryder's Journey: LONGGGGG updated post:)Ryder's family and friendshttp://www.blogger.com/profile/05000339233891608163noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-2078628465077598492.post-53340430808840417322010-11-23T01:44:11.947-08:002010-11-23T01:44:11.947-08:00You go girl. Without you doing your own research ...You go girl. Without you doing your own research you would not have known that you were getting duped. It's amazeing how you become the professional. I'm surprised that the insurance won't cover the genetic testing. Because of Louies testing we know that there is an Alaskan variant different from the lower 48. I was so mad at a doctor one time that hurt PJ that I was actually going OVER the gurney he was strapped to, to kill me the man who did it. He should be thankful to this day his nurse was closer to me than him and grabbed me. I went straight to the oncologist and filed and complaint. I was so livid. And this was a pediatric surgion that just about bought it. Les would have had a mom in the slammer if I wasn't stopped. You are the only one at times standing between your precious child and thoughtless degreed windbags. I believe many doctors are very afraid of us parents who use every means to find out facts. If they haven't done their homework, we will know it. It's birthday week for Noah, give him a kiss from me and let him know Grandma loves him.Almanoreply@blogger.comtag:blogger.com,1999:blog-2078628465077598492.post-4627772031618463092010-11-16T11:45:25.705-08:002010-11-16T11:45:25.705-08:00Wow, I am soo proud and happy for you. Mother'...Wow, I am soo proud and happy for you. Mother's instincts are always best. You are soo smart- your research is amazing. Dr. Denise, you are the wisest, caring, educated, loving mother and friend that I have ever known. I am really sooo proud of you, your strong personality and your overall sense of judgement.. Get rid of DR. T FOREVER!!!!!!!! love me!!Reneenoreply@blogger.comtag:blogger.com,1999:blog-2078628465077598492.post-65840607688765667752010-11-13T19:01:41.534-08:002010-11-13T19:01:41.534-08:00Way to go... Very proud of you... Keep it up and ...Way to go... Very proud of you... Keep it up and know that we are here for you... Love lots..<br />AprilAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2078628465077598492.post-70870556486715831322010-11-13T07:47:15.911-08:002010-11-13T07:47:15.911-08:00Ryder is very lucky to have caring and resourceful...Ryder is very lucky to have caring and resourceful parents like you both. So many of us are under the misconception that we must put blind faith in our doctors. You were so right when you said you know your baby's body & symptoms better than anyone. Thank heaven for the age of technology where we regular folks have tools to research and learn. Hugs to you all.Lori Fintonoreply@blogger.comtag:blogger.com,1999:blog-2078628465077598492.post-9260915293504259082010-11-13T01:10:48.149-08:002010-11-13T01:10:48.149-08:00Oh, Denise, I love you and Les, and little Ryder a...Oh, Denise, I love you and Les, and little Ryder and the boys so, so much! I am definitely on team Ryder! I'm really glad you fired that stupid doctor. What an idiot to tell you it was damage done at birth and the change his mind within minutes and after you pointed out why!! What kind of doctor is he? That's horrible to give a parent false hope. If you were not so diligent in researching, and so observant of Ryder's behavior and symptoms, you would have left that appointment still in the "Yah, this was all nothing" mindset. I feel bad for the parents that do. Doctors really need to be more careful of what they say and how they say it. Ryder deserves a doctor that is more caring, more concerned, and much more observant. I pray the doctor you are going to see on Feb 23rd is just that. I didn't know about the upper body shaking....is it like when he woke up from his nap that one day that I was over at your house? X0X0X0 CarrieCarrie Demasnoreply@blogger.com