Hi! The magnets are in!!!!!! Please help spread the word about leukodystrophy. | |||||||||
| My son has leukodystrophy. I am asking for others to help spread the word about this rare, devastating disease that affects the white matter of the brain. Little is understood about leukodystrophy and most people have never heard of it before. It has been a struggle to get the testing my baby needs because insurance doesn̢۪t cover many genetic tests. I contacted the United Leukodystrophy Foundation with the idea of making a magnet to help spread awareness. My husband brought my designs to EVIT (a vocational high school where he works). He also held a challenge for the graphic design... read more |
A glimpse of a child's battle with a rare degenerative disease and the legacy he left behind
Fundraisers for Ry
Tuesday, May 31, 2011
Magnets are in!!!!
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