A glimpse of a child's battle with a rare degenerative disease and the legacy he left behind
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Friday, June 17, 2011
We went to the GI and got X-rays of Ryder's tummy. He is very, very constipated and blocked up (way up high):( My poor baby. He's been fussing and screaming when having bm's for over a week--but soft bm's everyday. He has been waking up every night and not able to be comforted. His ped. told us not to worry unless the bm's were hard. I called the GI after watching him in so much pain the next day. Since he is hypotonic (weak trunk muscles) the GI feels his colon is weak too. He will be flushed out the next 3 days and then take medicine daily to help him:(
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