A glimpse of a child's battle with a rare degenerative disease and the legacy he left behind
Fundraisers for Ry
Tuesday, May 29, 2012
Quick Update
Quick update: I just got home from the hospital--Ryder will be there at least a few more days I'm guessing. He was able to hold down a few teddy grahams today-- he hasn't been tube feed or eaten anything since Sat. so he's been miserable. They started his bowel clean out when I was there & it will run through the night. EEG tomorrow & I hope he'll be able to eat. He was able to sit up on his own today at least & had some energy. It will be a long night for Les & Ry though. The bowel clean out gives him bad cramps & he's just uncomfortable.
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