Friday, June 8, 2012

Out of surgery

Ryder's surgery went well (PICC Line placed). He's sleeping off the anesthesia now. He has his next test (another barium swallow) at 2:30. Results from one of his test yesterday show he is only emptying 3% of what he consumes- which is horrible news. I'm not sure he'll ever be able to eat/drink by mouth again (he wants to soooo bad & it’s hard to explain why he can't to a 2 yr old especially when his brothers & family can eat :( He's in the PICU (ICU for pediatrics). At first we thought it was because it was the 1st room available, but are learning this is where he needs to be. The lipids that are running through his veins are horribly hard on his veins. They were changing IV sites 1-2 times a day and the site infiltrated a few times. Luckily, it was caught early enough. The lipids pool around under the skin and it is very painful. It burns and causes necrosis (killing the cells/skin). He's starting to wake up now- so will fill you in more later.