Friday, June 8, 2012

Out of surgery

Ryder's surgery went well (PICC Line placed). He's sleeping off the anesthesia now. He has his next test (another barium swallow) at 2:30. Results from one of his test yesterday show he is only emptying 3% of what he consumes- which is horrible news. I'm not sure he'll ever be able to eat/drink by mouth again (he wants to soooo bad & it’s hard to explain why he can't to a 2 yr old especially when his brothers & family can eat :( He's in the PICU (ICU for pediatrics). At first we thought it was because it was the 1st room available, but are learning this is where he needs to be. The lipids that are running through his veins are horribly hard on his veins. They were changing IV sites 1-2 times a day and the site infiltrated a few times. Luckily, it was caught early enough. The lipids pool around under the skin and it is very painful. It burns and causes necrosis (killing the cells/skin). He's starting to wake up now- so will fill you in more later.
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2 comments:

  1. DaciaJune 8, 2012 at 1:10 PM

    Les and Denise - words just can't express how I feel right now. I pray for a positive outcome, and that the doctors are treating him to the best of their ability. All of us (blog readers/Facebook family) are praying for all of you. Please find some comfort in knowing that you are so loved by all of us.

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  2. AnonymousJune 8, 2012 at 2:54 PM

    Hang in there! May I ask why a PICC and not a port-a-cath. MYL had a port when he was on TPN. Has Ryder had a motility study? That was where we found the needed answers with MYL. Sending prayers for your entire family. Remember to take care of yourself. Sending my love. Wish I could do more,
    ~~ttfn
    Annita

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