home now

We're home!!! Aaahhh...after 6 days in the hospital we were all going stir crazy! Of course all the staff fell in love with Ryder...who wouldn't:) We were trained on his home care and I was confident going home. I wasn't expecting the new emotions after we got home. It was so surreal having to worry about his pump and pulling out his NG tube. I keep reminding myself its a new phase in our daily reality. We are excited to meet families in our situation and speak with doctors who may have more insight for us at the conference:)